Ethics of patient engagement and participatory research approaches
Marjorie Montreuil, Nurse, PhD (Pragmatic Health Ethics Research Unit, McGill University); Aline Bogossian, PhD (Pragmatic Health Ethics Research Unit, Université de Montréal); Eric Racine, PhD (Pragmatic Health Ethics Research Unit, Université de Montréal, McGill University)
Patient engagement in healthcare is increasingly discussed in the literature and numerous initiatives engaging patients in quality improvement initiatives, organizational design/governance and research are more common. This engagement from patients raises a number of ethical challenges, which we examine through different types of literature reviews and reflective activities. This project targets both adult and child patients’ involvement.
- Montreuil Marjorie, Martineau Joé T., Racine Eric. Exploring ethical issues related to patient engagement in healthcare: Patient, clinician and researcher’s perspectives. Journal of Bioethical Inquiry, 2019; 16(2): 237-248; DOI: 10.1007/s11673-019-09904-6. Read article.
- Montreuil Marjorie, Bogossian Aline, Laberge-Perrault Emilie, Racine Eric. The ethics of participatory research approaches with children: a realist review. The Patient – Patient-Centered Outcomes Research. (Being evaluated)