Abstract
Background: Transition designates the process by which youths with chronic conditions migrate to adult healthcare. There are important and consequential clinical challenges in this period which have led to the development of transition programs. This period also evokes ethical issues about human flourishing (e.g., exercise of autonomy, self-acceptance of living with a chronic condition). However, awareness about these clinical and ethical issues is still lacking. Methods: We developed an interactive awareness-raising workshop about transition. The one-hour workshop comprised three parts: (1) information on the existing institutional transition program; (2) information about local research data collected on transition care and from which this workshop study stems ; (3) semi-structured discussion on the avenues for reflection and action in relation to the research results presented and the tools and support offered by the institutional program. Data were gathered through a short online evaluation survey to assess form and content of the workshop and field notes grasping workshop contributions, promising practices, and courses of action and mobilization. 88 participants were recruited in 10 clinics.
Results: The workshop was positively evaluated with respect to information provided, support for discussion, and improving practices. Four main learnings were reported including a need for better transition structure, information, preparation, and coordination as well as the recogni-tion of barriers and challenges in transition. Main ideas to improve practices included structural changes and policy improve-ments.
Conclusion: Results support the value of interactive workshops and participatory knowledge mobilization in the context of transition care, human flourishing, and ethics more broadly.