Re-considering vulnerability in mental health research ethics
Eric Racine, PhD (Pragmatic Health Ethics Research Unit, Université de Montréal, McGill University); Emily Bell, PhD (Pragmatic Health Ethics Research Unit, at the time of the study); Mary Ellen Macdonald, PhD (McGill University); Gustavo Turecki, MD, PhD (McGill University), Dearbhail Bracken-Roche, MSc (Pragmatic Health Ethics Research Unit, at the time of the study); Jelena Poleksic, MSc (Pragmatic Health Ethics Research Unit); Corinne Lajoie, MPhil (Pragmatic Health Ethics Research Unit), Gabrielle Doré (Pragmatic Health Ethics Research Unit)
Canadian Institutes of Health Research (CIHR)
This research has 3 key parts:
- Review of research ethics policies and guidelines on vulnerability and mental health conditions;
- Survey of and interviews with researchers and persons with lived experience of mental health conditions on vulnerability in research; and
- Interdisciplinary working group with experts (organizational partners, researchers) to produce policy recommendations and guidance.
Racine, E., & Bracken-Roche, D. Enriching the concept of vulnerability in research ethics: An integrative and functional account. Bioethics, in press.
Bracken-Roche, D., Bell, E., Macdonald, M. E., & Racine, E. (2017). The concept of “vulnerability” in research ethics: An in-depth analysis of policies and guidelines. Health Research Policy and Systems, 15(1), 8.
Bracken-Roche, D., Bell, E., & Racine, E. (2016). The ”vulnerability” of psychiatric research participants: Why this research ethics concept needs to be revisited. Canadian Journal of Psychiatry, 61(6), 335-339.
Bell, E., Racine, E., Chiasson, P., Dufourcq-Brana, M., Dunn, L. B., Fins, J. J., Ford, P. J., Glannon, W., Lipsman, N., Macondald, M. E., Mathews, D. J., & McAndrews, M. P. (2014). Beyond consent in research: Revisiting vulnerability in deep brain stimulation for psychiatric disorders. Cambridge Quarterly of Healthcare Ethics, 23(3), 361-368.