Parkinson’s disease and patient-centred care

Research team

Natalie Zizzo, MSc (Pragmatic Health Ethics Research Unit, at the time of the study); Emily Bell, PhD (Pragmatic Health Ethics Research Unit, at the time of the study); Anne-Louise Lafontaine, MD (McGill University); Eric Racine, PhD (Pragmatic Health Ethics Research Unit, Université de Montréal, McGill University)


Canadian Institutes of Health Research (CIHR)

Patient-centred care is a model of care that is responsive to patient preferences, needs and values. It is a model of care that has been endorsed for Parkinson’s populations. To provide effective patient-centred care to these populations, an understanding of how patients actually want to be involved in care is necessary. Through collaboration with a Montreal movement disorder clinic, we conducted surveys and interviews to improve understanding of how patients want to be involved in making decisions, the amount and types of information they want, their values in care, and their perspectives on the care they receive. Outcomes of this project are being used to inform future practice.


Zizzo, N., Bell, E., & Racine, E. (2017). What are the focal points in bioethics literature? Examining the discussions about everyday ethics in Parkinson’s disease. Clinical Ethics, 12(1), 19-23.

Zizzo, N., Bell, E., Lafontaine, A. L., & Racine, E. (2017). Examining chronic care patient preferences for involvement in health-care decision making: the case of Parkinson’s disease patients in a patient-centred clinic. Health Expectations, 20(4), 655-664.