Ariane Quintal is a doctoral student in Bioethics at Université de Montréal. She is interested by the ethical issues that arise in the context of rare diseases. She will be undertaking an participatory action research project including an online questionnaire and semi-structured interviews exploring the personal experiences of people with rare diseases, their relatives, healthcare professionals, and policymakers regarding this topic. The results of these qualitative research projects will inform the development of clinical decision-making tools that will support stakeholders in the resolution of certain ethical problems they face in the context of rare diseases.
Ariane previously completed a master’s in bioethics under the supervision of Dr Eric Racine and Dr Rémi Rabasa-Lhoret at the IRCM. Her research project consisted in identifying and characterizing the ethical and psychosocial issues raised by the artificial pancreas, a wearable medical device currently being developed to automate the management of type 1 diabetes. To this end, she did a critical and ethical analysis of the scientific literature on the artificial pancreas in addition to interviews with people with type 1 diabetes. Ariane also has an undergraduate degree in neurosciences.