Résumé: Growth in autism research necessitates corresponding attention to autism research ethics, including ethical and meaningful inclusion of diverse participants. This paper presents the results of a review of research ethics literature, strengthened by consultation with a task force involving autism professionals, family members, and self advocates on the spectrum. It reviews research ethics concerns around sex and gender; level of support needs; communication modes; race, ethnicity, geography, and language; socioeconomic status; and age. The exclusion of marginalized subgroups of people with autism is a major ethical concern. Researchers can facilitate inclusion by using inclusive terminology, developing accessible communication strategies, or traveling to meet participants. A person-oriented research ethics framework described in this paper structures the advice offered in the literature to create inclusive and supportive research environments.

 

CASCIO, M.A., WEISS, J.A. & RACINE, E. MAKING AUTISM RESEARCH INCLUSIVE BY ATTENDING TO INTERSECTIONALITY: A REVIEW OF THE RESEARCH ETHICS LITERATURE. REV J AUTISM DEV DISORD (2020). HTTPS://DOI.ORG/10.1007/S40489-020-00204-Z
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